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10 - DEVELOPMENT, PROMOTION AND ADOPTION OF A PERSON-CENTRED RESEARCH AND CARE (PCRC) FRAMEWORK FOR MENTAL HEALTH: FINDING STRENGTH IN COLLABORATION BETWEEN INTERNATIONAL STAKEHOLDERS
by Silvana Galderisi
Published on 2017 by

Introduction: Research conduct and care practices centred on the person have received increased attention in recent years. There remains, however, a strong unmet need for a widely accepted person-centred-research-and-care (PCRC) framework, endorsed by all stakeholders, to allow for good communication, robust evidence generation and optimal outcomes. The successful development and delivery of high quality social healthcare services encompasses an evidence-based, person-centred approach, including shared-decision-making, evidence-informed personalised care planning and self-management support, taking into consideration information asymmetry and potential disparities. Objective: to broker initial dialogue with stakeholders about their preferences and needs, opportunities/synergies, and assessing willingness to actively support a collaborative participatory initiative for the development, promotion and adoption of such a framework. Methods: A series of national/international policymakers, regulators, academics, healthcare professionals and patient representatives were asked to provide feedback on collaboration plans to strengthen PCRC and examine the key elements that ought to drive the generation, promotion and adoption of such a framework. Results: Current issues that still prevent successful PCRC practices were highlighted, i.e., poor training; limited knowledge/exchange between stakeholders; lack of readily accessible information and best practices, including tools to support local advocacy programmes and to guide evidence-informed policy, diversity and inclusion schemes; lack of tools to monitor and evaluate outcomes and impact of efforts related to PCRC practices; and lack of formal partnership between stakeholder groups in research and practice. Discussion: A PCRC framework and a collaborative and participatory model are required to promote and adopt evidence-informed policymaking and lead to more resilience on person, system and society levels.

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